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The following is a summary of “Experiences and challenges of people with multiple sclerosis and low attendance to clinical follow-up: a qualitative study,” published in the March 2025 issue of BMC Neurology by Beczek et al. 

Many people with Multiple Sclerosis (MS) in Europe face limited access to specialized care. Research on their challenges is scarce, leaving a gap in understanding. 

Researchers conducted a retrospective study on people with MS in Denmark who missed regular follow-ups in specialized clinics, focusing on their experiences, challenges, and self-care. 

They conducted a qualitative study using individual interviews and thematic analysis following Braun and Clarke’s approach. Data were collected in Denmark from September 2022 to February 2024 through semi-structured interviews guided by Kvale and Brinkmann’s principles and managed using NVivo. 

The results showed that 15 participants were included; 73% were female, 53% had relapsing-remitting MS, and 60% were untreated. Mobility aids were used by 53%; most were married, had adult children, had medium education, and were on disability pensions. Participants were evenly distributed across Denmark. The analysis identified 2 themes: Cognitive and bodily disruption, highlighting self-care challenges and disruptions in care pathways, and showing the impact of aging and healthcare gaps. 

Investigators faced physical and cognitive challenges affecting self-care, experienced disruptions in care pathways, lacked symptom management tools, and felt undervalued, making it harder to manage their health and daily life. 

Source: bmcneurol.biomedcentral.com/articles/10.1186/s12883-025-04106-7