For a study, researchers aimed to synthesize current knowledge on patient-prioritized bladder cancer outcomes. Patient-centered outcomes research aimed to assist patients in determining the best treatment for them at the correct moment in their care. As a result, patient-centered outcomes research was based on examining the influence of treatment on patient-centered outcomes. Some outcomes, such as survival, were frequently emphasized by both patients and healthcare specialists. Patients frequently place a higher value on quality of life outcomes than specialists. As a result, a large number of patient-centered outcomes are also patient-reported outcomes. The expenses and financial burden of care, anxiety, and despair associated with a health condition, and the impact of an illness or its treatment on a caregiver or loved one were all unique categories that are frequently emphasized by patients but disregarded by professionals.
Patient-centered outcomes were gaining traction as a result of their inherent value and ability to increase the effect of research investigations. While patient-centered outcomes were frequently patient-reported outcomes, that was not always the case. The availability of a research-oriented Patient Survey Network designed to discover research questions that were significant to patients might be an opportunity to extensively gather opinions on patient-centered outcomes for bladder cancer research topics, which is unique to bladder cancer.
Reference:link.springer.com/article/10.1007/s11934-018-0858-0
