Photo Credit: Marco Marca
The following is a summary of “Spanish and catalan versions of the kidney patient reported experience measure (PREM) for chronic kidney disease (CKD): cultural adaptation and face validity,” published in the December 2024 issue of Nephrology by Moharra et al.
Chronic kidney disease (CKD) affects over 800 million people worldwide. Patient-reported experience measures (PREMs) help assess patient experiences with healthcare, guiding improvements in CKD management.
Researchers conducted a retrospective study to adapt the English version of the Kidney PREM to Spanish and Catalan.
They followed the International Society of Pharmacoeconomics and Outcome Research (ISPOR) Principles of Good Practice for translation, including forward and back translation, cognitive debriefing, and harmonization between Spanish and Catalan versions. Face validity was assessed with 10 Spanish- and 10 Catalan-speaking health professionals.
The results showed that 9 patients with CKD (4 Catalan, 5 Spanish) participated in cognitive debriefing. About 14 healthcare professionals (2 nurses and 12 nephrologists) assessed face validity. The translation was smooth, with no substantial issues. Patients found the questionnaire relevant and easy to complete but struggled with ‘skip’ questions. Clinicians rated the questionnaire highly for relevance (mean score 8.7/10) and acceptability, though some elements, like the lack of an open-ended question or lifestyle queries, were considered missing.
Investigators adapted the Kidney PREM questionnaire into Spanish and Catalan, demonstrating acceptable face validity, and these versions will enhance research and clinical practice for patients with CKD in Spain.
Source: bmcnephrol.biomedcentral.com/articles/10.1186/s12882-024-03909-z
